Annual Report 2006-07, Society for Hemophilia Care-SHC India
Children are the most important segment of our society. Sometimes nature is not kind with them. Some children are born with some genetic disorders and have to live with it. One such condition is Hemophilia where the child has uncontrolled bleeds mostly into joints. This is because their blood does not clot/coagulate. The treatment is fortunately very much available but very expensive and hence beyond the reach of thousands of parents. Lack of treatment means joint damage & physical disability. In India (unlike the developed world) most of these children have to face disabilities in their childhood. They drop out of the schools, get stigmatized and become life long dependents. They face discrimination.
BUT ALL THIS IS PREVENTABLE
If the awareness and treatment are accessible and affordable a child will not be disabled & can receive education in schools & colleges and contribute to the betterment of our society and country.
SHC India was registered on October 10 2005 under the Societies Act. In a short period of 18 months it has achieved a very humble success. This has been possible due to its dynamic & well experienced Governing Board & Advisory Board coming from all over the country.
Mission: "Nobody should die or become disabled when the treatment is available"
SHC Mission focus areas are:
E ducation & Awareness about Hemophilia, its adversaries and prevention. Encourage the environment to prevent HIV/AIDS, Hepatitis B & C in persons having hemophilia. Prevention of disability in such persons;
A dvocacy for safer, ethical and affordable Hemophilia Care. Focusing on the need and bringing a positive change in the attitude of the government authorities and having them recognise the need of providing Hemophilia Care;
S upport & have partnerships in making SHC vision a reality by 2015;
Y outh empowerment and making them self-reliant.
Vision: "Hemophilia Care is within reach regardless of ability to pay"
SHC India Policy: SHC India is a public funded charity & works with complete transparency, work ethics & accountability towards its donors and other partners through qualitative management and effective communication. It also encourages an environment under which the public has the opportunity to analyse the result of their support. We believe that a donor invests for social returns in making quality change in the lives of most needy.
SHC India Promise: We at SHC India do hereby promise to accomplish our Vision & Mission in complete transparency with our donors & affected community.
(A). Operational Activities:
For any newly founded organization setting up the basic minimum infrastructure withcommitted workers is the backbone. Due to the reputation & selfless commitment of office bearers SHC India:
|How the Rupee came: (in lakhs), Provisional figures as Audit is in process|
|Donations & Sponsorships :||Rs.18.33 62%|
|Proceeds from Events :||Rs.03.92 13%|
|Contributions for Medicines :||Rs.07.47 25%|
|TOTAL : Rs.29.72 100%|
|How the Rupee was spent: (in lakhs), Provisional figures as Audit is in process|
|Awareness & education||Rs.10.11 34%|
|Procurement of Medicines||Rs.10.05 34%|
|Operational Expenses||Rs.05.42 18%|
|Economic Rehabilitation||Rs.01.12 04%|
|Surplus Carried forward||Rs.03.12 10%|
|TOTAL : Rs.29.72 100%|
Full details of Audited Financial Statements can be viewed on our website in 30 days time.
(E). Support from Corporate Houses & individual donors:
We wish to put on record the support we have received from various Corporates/ multinational corporations like ONGC, HDFC Bank, UTI Bank, Radisson, New Delhi, Baxter India, Kingfisher Airlines etc and individual donors for our above initiatives.
"My first Impression of SHC India was that of a group of highly dedicated and experienced professionals coming together for a noble cause.
In a country where even the well educated have not heard of a disease that renders children physically challenged, promoting awareness of the ways and means for treatment needs a strong initiative.
I am glad I have been able to lend a helping hand to SHC India. I have been able to start a dialogue within my organization on the need to provide a helping hand to SHC, in terms of voluntary and financial help. If professionals like me can come together and devote even an hour every week from their work schedules to its cause, we would never see people dying when treatment is available."
Sapan Shah, American Express Bank